Okay so it’s coming to the end of my second day at Cygnet and so far it has been really difficult but today was definitely an improvement on yesterday. I’m struggling with feed being increased and no fizzy drinks and there have been a number of incidents but I really hated it here yesterday and today I feel like I can manage so it’s probably just a case of settling in. Time on my phone is limited though so updates probably won’t happen very often.
Building a life worth living is a big part of DBT and it’s something I haven’t worked on much or even thought about until recently. I’ve been unwell for well over a decade and have been in hospital for a year and a half. I’ve never been a mentally well adult and have not been able to function at a normal level since school. For these reasons I have always found it very difficult to think of a life outside of my illness and in some ways that can hold me back in recovery. However just weeks before I’m due to go to a specialist unit which can help me I have an idea of how life will look when I come out of hospital.
I know I won’t come home fully recovered and jumping with the joys of spring but I imagine I’ll be able to function. I want to attend outpatient appointments with my mental health team but alongside that I want to work in a bakery, go to ballet classes, help out with the younger ballet classes and prepare and cook my own meals and snacks from scratch. I could then channel my obsession with food down a productive and enjoyable route whilst still enjoying dance and exercise at a sensible level.
If I can maintain that lifestyle for a while then the next step will be learning to drive and getting a place of my own even if that’s renting a studio flat. Then the next step, and the one I’m most excited about will be becoming a mother. I’ve already decided for very personal reasons that I want to be single so I will go to a clinic and use a sperm donor to conceive.
I think it is good to go to this new unit with an image of what I want my life to look like when I come home. So this is me thinking of building a life worth living.
Last night when I had my final feed for the day the nurse who was with me helped me to use imagery to get through it. We both did ballet and both love ballet so she got me to close my eyes and imagine I was in ballet class. In my mind I walked to the corner, watched the four dancers before me then did my preparation and off I went with my arms in second position spinning and spotting, spinning and spotting until I reached the end of the room. Then I watched the three other dancers that were after me before walking to the corner and repeating. I repeated this over and over again in my mind until my feed was finished and that’s how I got through it. Total imagery taking me away from a reality that feels unbearable.
Radical acceptance is a DBT skill and it’s all about accepting the situation you are in and making the best of it. It’s a skill to use when the situation can’t be changed, for example after someone binge eats they cannot change that they have binged and the best thing to do is to radically accept you have binged and to use skills to cope with the binge rather than using more negative behaviours to cope such as purging or self harm.
Right now I am in a situation I do not like. I am frustrated that my choices have been taken away from me now that I am sectioned and it gets to me that I can’t do what I want to do like going for a walk or going to bed when I want to instead of having to wait for the medication round to get to me. It’s frustrating that I don’t have freedom and I find it suffocating that I have two staff members within arms reach of me at all times. I long to have five minutes alone, to use the toilet in peace, for some privacy when visitors arrive. It gets a bit much sometimes but I can’t change this. This is the situation I am in and I will be in until I go to a specialist unit in May. I have to radically accept that this is my life right now and make the best of the situation that I can. None of this is going to go away. I wish I had choices, freedom, privacy and alone time but I don’t so I’m radically accepting that this is how it is. When my visitors come we can still have a nice time without privacy. When they feed me I have to accept that this is how it is and I have no choice in it. Whilst this situation feels suffocating I have two people next to me that I can talk to about anything and everything and I should embrace that and use them. Things aren’t great right now, I hate the situation I am in but right now I cannot change it, I just have to make the most of it.
As cliche as this sounds, I can honestly say that I would not be alive if it weren’t for music. Music has got me through the good times, the bad times and everything in between. I will never forget getting up in my hotel room and listening to ‘I’m on top of the world’ by imagine dragons whilst getting dressed before my appearance on BBC Breakfast. I will never forget listening to Meatloaf in the car on the way to the airport before we flew to Rome. That’s the funny thing about songs they hold memories and that can be a double edged sword. Whenever I hear ‘moves like Jagger’ I am plunged head first into the memory of sitting in the lounge in a psychiatric hospital whilst a patient dances around the room. Hearing ‘cake by the ocean’ will always remind me of the cold,hard days spent in utter boredom in the secure unit. There are Ed Sheeran songs that remind me of ex partners and no matter how much I like Ed Sheeran, I cannot hear these songs without feeling like complete rubbish. Music can be therapy but there is also a danger of music being harmful to the mind so be careful.
So, music and recovery. I use music at the moment to get me through my feeds as I’m currently being treated for anorexia nervosa and am being fed through an NG tube. I have a specific playlist named ‘Feed’ which consists of:
- I’m yours-Alyssa Bernal
- Boom clap-Charli XCX
- Learn to live-Darius Rucker
- Starman-David Bowie
- Survivor-Destiny’s Child
- On top of the world-Imagine Dragons
- Cold in Ohio-Jamie Lawson
- Living in the moment-Jason Mraz
- Breathe in, breathe out, move on-Jimmy Buffet
- Little me-Little Mix
- Scare away the dark-Passenger
- Superheroes-The Script
- Let it go-Demi Lovato
- Heroes-David Bowie
- Chocolate-The 1975
- Love my life-Robbie Williams
All of these songs I either find relaxing, recovery focused, feel good or they hold positive memories. I find feeds really distressing and I know a lot of recovery can be distressing, that’s why in DBT there’s a whole module called ‘distress tolerance’. For me, music is my distress tolerance. ‘Cold in Ohio’ always relaxes me whilst ‘living in the moment’ reminds me of mindfulness. ‘On top of the world’ is a proper feel good song and also reminds me of the positive memory when I went on BBC Breakfast. ‘Little me’ gives me the reminder that I want to make 4 year old me proud. Maybe I won’t be able to listen to these songs again once all of this is over but for now they are getting me through and that’s what recovery is about, getting through.
I was amazed to receive an email congratulating me on coming in the top 60 mental health blogs on the planet. Mental illness Talk came in at number 41.
The link can be found here
Today is Time To Talk day 2017 so take 5 minutes to talk about mental health. It is so important that we get these conversations going because they can save lives as well as working to stamp out stigma.
This Time To Talk day, I’m going to tell you a little bit about how I’m spending it. I’m currently in a general hospital being tube fed for my anorexia, I’m on 2:1 observations meaning I have two members of staff with me at all times and I’m on a level 4 which means I must be within arms length of the staff members, this includes when using the toilet. So there the facts about my situation but now it’s time to talk about how I feel.
I’m confused, recovery and weight restoration is being forced on me and I’m not sure that I want it. I’m scared about the future, my team are looking for a unit to send me to and so far none have accepted me. I don’t know what the near future holds for me. I’m homesick, I haven’t been home in 18 months and I would give anything to sit on the sofa with my family and dog and watch some rubbish telly. I feel alone and lost, I haven’t seen many people in the last 18 months and my grandmother has passed away during that time, I never got to say goodbye, I wasn’t well enough to go to her funeral and that breaks my heart everyday. I’m annoyed and angry at myself for losing out on so much. My goddaughter will be 3 in March and I’ve missed so much of her growing up, my dog is 14 and I’m scared she will die before I get home.
I have conversations about mental health every single day because I am unwell, but you don’t have to be ill to talk about mental health. We all have mental health, so please this Time To Talk Day 2017, take 5 minutes to ask someone how they are, send a text, natter over a cuppa, get the conversation going about mental health.
Happy Time To Talk Day everyone!