The complaint process is something I am currently going through and it has not been an easy ride. I was unsure of whether to complain at all because I didn’t want the hassle on top of everything else and neither did I want to make it awkward between me and the staff member I was making the complaint about. Then I realised that actually I matter and this matters. It’s important that the issue is raised and the staff member is educated otherwise her comments could haunt me for years to come. You are entitled to, and have a right to complain about the care you are given. If you would like to make a complaint about the care you have received then contact the service and ask for their complaints procedure.
The GP plays such a vital role when it comes to eating disorders. They are the key holders to all other services and provide referrals to eating disorder services and community mental health teams as well as referrals for the physical effects of eating disorders such as bone density scans.
The GP is the foundation upon which the rest of treatment is built. They often monitor the patient’s weight and do regular blood tests. They are often the first port of call for the sufferer. This is why it is so important that GPS have training and understanding in eating disorders.
I had been ill for years but when I went to the GP to ask for help I was terrified. It shocked me to see the words ‘anorexia nervosa’ on my notes and I so desperately needed help. Despite the low weight and terrible mental state I was told to come back in a month. A month is a long time for someone so desperate and poorly. I couldn’t see how I could get through another month and out of sheer fear and desperation I took an overdose which hospitalised me and resulted in a CAMHS referral and a referral to the eating disorder service.
Usually GPs continue to support the patient whilst they are under the care of mental health services monitoring both weight and bloods and it is important that GPs know how to support and talk to the patient in a way that is supportive and full of understanding.
When it comes to eating disorders, early intervention is so important. I often wonder what my life would be like if I would’ve had treatment much earlier on in my eating disorder. Looking back I just wish someone would’ve taken me seriously. My parents were called into school because I had been throwing my packed lunch away and concerned friends told teachers but other than that no action was taken. The school nurse’s response was to tell me that I didn’t want to end up like a girl in the year above me who had anorexia. On one occasion I did visit the GP but no further action was taken, there were no referrals to CAMHS or follow up appointments. I wasn’t referred to eating disorder services until I was 17, at which point I was years into my illness.
Early intervention is important because these illnesses are so easy to get stuck in. They take over the whole of who you are. Anorexia took over my body, my personality, my social life and eventually my identity. Food and weight were all I thought about and if I wasn’t obsessing over these I was exercising. It became my life and the longer it is your life, the harder it is to get out of. With early intervention comes quicker recovery and I believe there is more chance of making a full recovery too.
Early intervention isn’t just important in the beginnings of eating disorders but also when it comes to relapse. When I first relapsed with anorexia nervosa it took 13 months from referral to treatment by which point I was very poorly both physically and mentally. At the beginning of my relapse I had friends, a boyfriend, a part time job and I was studying A levels at college. At the start of treatment I hadn’t seen friends in months, I had broken up from my boyfriend, was unemployed and had lost my place at college due to my health. Now imagine if things had been different and I would’ve gotten treatment earlier on, I might’ve been able to make things work with my boyfriend and my job and college. I might not have lost my life to the illness and since losing it, I have yet to rebuild it.
Maybe with early intervention I wouldn’t be typing this from a hospital bed with an NG tube up my nose and maybe it would’ve saved a lot of heartache and pain not only for me but for my family too.
Eating disorders are potentially fatal illnesses and unfortunately some sufferers do die whether this be because of health complications or suicide. Early intervention would save lives.
So my message is this: Early intervention when it comes to eating disorders is key and life saving in more ways than one.
Today is Time To Talk day 2017 so take 5 minutes to talk about mental health. It is so important that we get these conversations going because they can save lives as well as working to stamp out stigma.
This Time To Talk day, I’m going to tell you a little bit about how I’m spending it. I’m currently in a general hospital being tube fed for my anorexia, I’m on 2:1 observations meaning I have two members of staff with me at all times and I’m on a level 4 which means I must be within arms length of the staff members, this includes when using the toilet. So there the facts about my situation but now it’s time to talk about how I feel.
I’m confused, recovery and weight restoration is being forced on me and I’m not sure that I want it. I’m scared about the future, my team are looking for a unit to send me to and so far none have accepted me. I don’t know what the near future holds for me. I’m homesick, I haven’t been home in 18 months and I would give anything to sit on the sofa with my family and dog and watch some rubbish telly. I feel alone and lost, I haven’t seen many people in the last 18 months and my grandmother has passed away during that time, I never got to say goodbye, I wasn’t well enough to go to her funeral and that breaks my heart everyday. I’m annoyed and angry at myself for losing out on so much. My goddaughter will be 3 in March and I’ve missed so much of her growing up, my dog is 14 and I’m scared she will die before I get home.
I have conversations about mental health every single day because I am unwell, but you don’t have to be ill to talk about mental health. We all have mental health, so please this Time To Talk Day 2017, take 5 minutes to ask someone how they are, send a text, natter over a cuppa, get the conversation going about mental health.
Happy Time To Talk Day everyone!
Today the BBC have published an article http://www.bbc.co.uk/news/health-31914765 stating that the government will admit that mental health services for children and young people in England need a complete overhaul. Ministers are said to be proposing a five year plan to improve services but already that’s too little too late. CAMHS services go up to the age of 18, this means that all people aged 13-25 now have slipped through the net and will probably not get the help they need. Children and young people’s mental health services are a complete mess at the moment, suggesting a 5 year plan is a start but changes need to start happening now, not in 2020.
The BBC’s article lists some statistics on child mental health and the one that really struck me was that one in six 16-24 year olds has a common mental disorder. That’s a staggering number of young people but what’s more shocking is that this article implies that the 16-24 age bracket are a part of this ‘overhaul’ but the truth is that this will only improve mental health services to those under 18, the rest of those young people will be lost within the adult mental health services or simply not get the help that they need. Too often we cling on the words of these articles but I can already see flaws and dishonesty.
To tackle the problems ministers have come up with a list of measures, these include a comprehensive set of waiting time targets for services, the launch of an anti-stigma campaign, continued support into the early 20s, greater use of online tools and apps, care close to home and extra training for GPs and schools. This all sounds fantastic and could help change and save so many lives as long as these promises are stuck to. Saying and doing are two very different things. We have got ministers to listen, now the fight begins to get them to stick to their word.